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Multiple Myeloma Resources
If you would like additional information or print copies of the brochures listed below, please stop by the Community Cancer Resource Center (CCRC), call the ASK-RPCI line at 1-877-ASK-RPCI (1-877-275-7724) or email ASKRPCI@roswellpark.org.
General
What You Need To Know About™ Multiple Myeloma – This National Cancer Institute (NCI) booklet introduces the symptoms, diagnosis, and treatment of multiple myeloma. It also has information to help patients cope with the disease.
Facts 2007-2008 – This annual publication from the Leukemia & Lymphoma Society is a compilation of the most recent data on incidence, mortality, and survival statistics associated with the types of cancer that start in the bone marrow and lymphatic system.
Cancer.Net - The patient information Web site of the American Society of Clinical Oncology (ASCO). With nearly 25,000 members in the United States and abroad, ASCO is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer. Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions, including information on multiple myeloma.
Myeloma – This Leukemia & Lymphoma Society booklet provides information about myeloma for patients and their families.
Myeloma: A Guide for Patients and Caregivers – This Leukemia & Lymphoma Society booklet provides information about myeloma for patients and their caregivers.
Multiple Myeloma: Disease Overview – This Multiple Myeloma Research Foundation (MMRF) booklet is designed primarily to help newly diagnosed patients, and their friends and families, better understand multiple myeloma.
Multiple Myeloma Patient Handbook – This handbook by the International Myeloma Foundation (IMF) provides information on the types of myeloma, testing, treatment, supportive care and questions to ask the doctor.
Additional general information on lab tests, diagnostic testing and imaging, pathology, etc.
Screening and Prevention
No screening tests are available, and early detection can be difficult. Physical examination will identify swollen areas for biopsy tests. Other tests include blood and antibody analysis, bone marrow biopsy, and special staining of blood cells to confirm a cancer diagnosis.
Treatment
NCI Physician Data Query (PDQ®): Multiple Myeloma and Other Plasma Cell Neoplasms Treatment – This NCI document details treatment options for patients with multiple myeloma. Document is available in patient or health professional version.
Multiple Myeloma: Treatment Overview – This MMRF booklet will help you better understand the treatment options for multiple myeloma.
Additional treatment information for all types of cancer.
Treatment Related Issues
Blood Transfusion – This Leukemia & Lymphoma Society booklet provides information about blood transfusion for patients with leukemia, lymphoma or myeloma (blood cancers) and their families.
Understanding Drug Therapy and Managing Side Effects – This Leukemia & Lymphoma Society booklet discusses the treatment of blood cancers and how the variety of side effects from the drug treatments can be effectively managed.
Information on treatment related issues for all types of cancer.
Nutrition
Nutrition information for people with all types of cancer.
Resources and Support
Multiple Myeloma: Supportive Care – This MMRF booklet is designed to help newly diagnosed patients and their friends and families to better understand multiple myeloma and its complications.
RPCI Myeloma Support Group – Learn more about RPCI's Myeloma Family Support Group.
Cancer support materials for people with all types of cancer.
Organizations
Leukemia & Lymphoma Society – The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Multiple Myeloma Research Foundation – The Multiple Myeloma Research Foundation (MMRF) was founded in 1998 by identical twin sisters Kathy Giusti and Karen Andrews shortly after Kathy's diagnosis with multiple myeloma. The mission of the MMRF is to urgently and aggressively fund research that will lead to the development of new treatments for multiple myeloma.
International Myeloma Foundation – The International Myeloma Foundation (IMF) is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
Learn about other organizations for people will all types of cancer.
Survivorship Resources
Learn about our survivorship resources for patients, care givers and loved ones.
